Wow! Thank you to everyone who donated and allowed us to hit our original goal of $43,920. We are eternally grateful. However, we still have time to raise more funds and are looking to raise a total of $65k for our stretch goal. There are still outstanding production and marketing expenses and any additional donations will be applied to them. These production expenses include: deferred equipment rental, deferred labor costs, travel expenses and hard drives. In addition, we'd love to be able to afford marketing materials for film festivals so as many people will see the film as possible.
The Krakowiak family faces the everyday struggle of having a special needs child with an undiagnosed disease … twice. Best friends since age 15, Heath and Mariel have two young children that have been through the NIH Undiagnosed Diseases Program. The kids have had their full genome sequenced without finding any official answers or diagnosis beyond two individual genetic mutations. With no official diagnosis they receive less government funding for their therapies because there is no “box to check.” They are forced to apply for grant funding to supplement their significant out of pocket costs.
Every day is a challenge as Colbie (8) and Lleyton (5) try to navigate their way through the world in a way we can’t fully understand. Their brain scans are 100 percent normal, but they suffer from a debilitating disorder that has prevented them from ever speaking a word or taking an unassisted step. They lack fine motor skills and struggle with structural issues as they grow older and bigger. And there is no way for them to reciprocate the unconditional love bestowed upon them by their family.
Dave Adams is a Brooklyn-based documentary and commercial Director/Cinematographer. He started his career working for National Geographic in Washington, DC. His clients include Facebook, Samsung, adidas, IBM, New Balance, National Geographic, Netflix, Universal Music and Huffington Post. He served as cinematographer for the Vimeo Staff Pick short documentary “DCDC” and as the co-director/cinematographer for the feature length investigative documentary “The Wrong Light” coming to theaters in spring 2017.
Matt Cascella became interested in filmmaking at the spry age of twelve, when sports & theater gave him the boot. Cascella received a BFA in film studies at the School of Visual Arts, where his thesis film, This End Up, earned him Best Director. Since then he’s worked as both editor & director for the likes of HBO, National Geographic, The Museum of Modern Art, American Museum of Natural History, Buzzfeed, Vice, CNN, The Huffington Post, Maysles Films, Discovery ID, as well as screening at notable festivals, including Sundance Film Festival, Tribeca Film Festival, & The Big Sky Documentary Film Festival. His credits include the 30 for 30 short I am Yu'pik, ESPN's Emmy-nominated Run Mama Run, and Joel Berlinger's Killing Richard Glossip.
Adam Soltis is a New York City based commercial and documentary sound mixer whose credits include Saturday Night Live, Chevy, ABC, Sprite, adidas. He's boomed everyone from Ice Cube and Aziz Ansari to Carly Simon and Russel Simmons.
Renee Woodruff Adams was college roommates with Mariel at Bowling Green and brought this story to her husband Dave. She's been working in national media ad sales for the past 12 years working with companies like Yelp, Yahoo and Groupon. She's a certified Yoga teacher, trained chef and a sounding board for Dave on the film.
WHAT YOU'RE HELPING US PAY FOR!!!
Our film is in the final stages of edit with a total running time of 30 minutes, but we need to put the finishing touches on the project. Your money will be used for:
Edit Suite and Labor
Color Correction and Finishing at Irving Harvey
Post Sound Mix and Design
Film Festival Submissions
Risks and challenges
This is a fully independent documentary project, but we are completed with a rough cut and will be finishing the project by the end of September if funded via Kickstarter. We will distribute the film to donors after its festival premiere.Learn about accountability on Kickstarter
- (30 days)