$26
pledged of $4,000pledged of $4,000 goal
2
backers
Funding Unsuccessful
The project's funding goal was not reached on Sat, July 6 2019 11:56 PM UTC +00:00
Last updated July 6, 2019

Grandpa & Lewy

A story of hope and empowerment for children touched by Lewy Body Dementia.

Grandpa & Lewy

A story of hope and empowerment for children touched by Lewy Body Dementia.

$26
pledged of $4,000pledged of $4,000 goal
2
backers
Funding Unsuccessful
The project's funding goal was not reached on Sat, July 6 2019 11:56 PM UTC +00:00
Last updated July 6, 2019

About

Grandpa and Lewy is a story of hope and empowerment for children touched by Lewy Body Dementia. Lewy Body Dementia is a disease that takes on the cognitive decline of Alzheimer’s along with the motor symptoms of Parkinson’s disease that together wreak havoc on both the mind and body. 

According to the Lewy Body Dementia Resource Center, Lewy Body Dementia affects approximately 1.4 million people in the United States. Watching my own father struggle with this disease for more than 10 years was devastating. Watching my children witness Grandpa’s decline was even harder. When my father was diagnosed with Lewy Body disease 15 years ago, we thought he had two terrible diseases -- Parkinson’s and Alzheimer’s.  Once we learned that it was Lewy Body Dementia, we continued to refer to it that way as no one had ever heard of Lewy Body Disease. It is now much more well known as Robin Williams, Casey Kasem and Ted Turner are believed to suffered from it bringing more awareness in recent years. However, resources to help children understand and cope with a loved one and Lewy are scarce.  Grandpa and Lewy addresses some of the symptoms that LBD patients face and how a child might help a love one dealing with the disease.  

Risks and challenges

Trying to raise the cost for illustration and self publishing of my book with the hope of helping children and families affected by this terrible disease. I have several publishing companies interested in my project the only risk is not reaching my goal to cover the cost of illustrations and publishing.

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Support

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    Pledge $10 or more About $10

    Purple LBD Bracelet

    Lewy Body Awareness Bracelet

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    First edition copy of the book

    Get an early copy - hot off the presses.

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    Signed copy of Grandpa & Lewy

    A first edition signed copy of the book.

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    Signed copy of the book and sponsorship

    Get a signed copy of the book and your name printed on our Walk to End Lewy t-shirt

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Funding period

- (60 days)