Update 28 March 2:30pm
You are all so amazing. Thanks to all your support, encouragement and kindness we’ve met our goal with 2 and a half hours to spare!
This doesn't mean you can't still pledge your support and get your own copies of this important and unique picture book when it is finished. The more books we get out there the more people we can reach!
Foggy Frog and the Pain Gang wouldn't have happened without all of you. This story started as a way for me to put some distance between myself and the symptoms of my illness, but it grew into something so much bigger.
The campaign ends at 5pm today and this page will be frozen. You will still be able to see everything that happened in the campaign - but you won't be able to back the project here anymore.
If you miss out on joining us here and you're interested in Foggy Frog and the Pain Gang, or want to pre-order the book, head over to www.mychroniclifejourney.com.
I look forward to seeing you soon!
Update 25 March 2014, 4:30pm
A wonderful, annonymous backer has offered to match all pledges for the next 72 hours up to $1,500.
This means every dollar that you contribue counts twice towards our goal of bringing this unique and much needed picture book to those who need it most!
What is this project about?
Foggy Frog and the Pain Gang bring chronic pain, fatigue and fog to whomever they visit. This is their story through the eyes of the person they visit.
Those who have invisible illnesses will recognise their own experiences through the ones portrayed in the book, and others can begin to get an idea of what it may be like.
Approximately 1 in every 5 people around the world suffer from some form of chronic pain so chances are you do or you know someone that does. TWEET THIS
Last year I was diagnosed with Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome), Pelvic Congestion Syndrome, and Fibromyalgia.
Foggy Frog and the Pain Gang was a way for me to put some distance between myself and my symptoms. When I couldn't find any simple picture books about these illnesses, I decided it was time to share their story.
One other thing that is important to me is the process we have chosen to use to get this done. I am collaborating with others in the Spoonie Community, making this a story from the community for the community, and I'm finding options to do as much of it locally and/or sustainably as possibly. The books are going to be published everywhere at the end of the process; however, they will be created in a communal and sustainable way.
Why do I want to do this?
I love children's books and always enjoy reading them as well as discovering the underlying messages that are being portrayed. Before falling ill my main focus was on books that had a keen sustainability or environmental theme. This all changed a year ago when I fell ill and tried to find a book that explained what I was going through in very simple terms. There just wasn't one anywhere!
So began the adventure of writing my own book to fill that gap. Now that it's been written, I want to share this story with the world. This book is my way of giving back to the wonderful community that has done so much for me on my journey with this illness.
What do we already have?
We have the story:
Megan Schartner, author of the blog My Chronic Life Journey, has used insight from her own experiences with chronic illness and those of other bloggers and followers to produce a capturing tale of the impacts Foggy Frog and the Pain Gang can have on a person's daily life.
We have an illustrator:
At the moment I'm illustrating this book myself to save on costs. I'm working tirelessly on developing the characters and storyboard to make this vision a reality. We will be sharing images with backers as they're available.
If anyone has experience in illustrating books and would be interested in coming on to the project we'd love to have you on board!
We have the community:
What do we need from you?
Our mission is to raise $7,500 and I'm sure you want to know where your investments will be going.
To make this campaign even more successful, it is also imperative to share this information with your family and friends, and explaining to them why this is so important.
Where will the money go?
The $7,500 raised will go towards finalising the illustrations and layout of the book as well as producing an e-book and printing and distributing our first run of 250 A4 paperback full colour picture books.
A budget breakdown is shown in the graph below:
Let's get this book out there! Many communities would find this book very beneficial, and it would assist many people with gaining a better understanding of invisible illnesses. The more coverage and support we get here, the more we'll be able to get this book out in the world in a way that works for many and not just a few.
This is a project that includes elements traditional publishers wouldn't like at all. The way I am collaborating to create the story and the illustrations as well as my desire for local printing are both things that even supportive publishers just aren't capable of doing.
Publishers make great books but for me this project is different. This project is not just about making a book (although that is a big part of it) it is about proving ourselves, to publishers and the general public, that this is an important topic that should be addressed in literature for all ages.
Your support lets us do it in a way that is sustainable and benefits the community as a whole. It's all about making a statement for the invisibly ill.
Below is our current schedule for completion of this project and delivery of rewards. Note the extended time frame to take into consideration recovery and avoidance of ill health.
Why should you support this project?
All people deserve to have their story heard, and those of us with invisible illnesses (some of which aren't even recognised fully in the medical community) deserve to have ours heard too! TWEET THIS
"Foggy Frog and the Pain Gang" tells the first part of that story without leaving people out because their illness isn't recognised or they don't have a name for it. It is a story for anyone who is part of the Spoonie Community, or who knows someone that is.
Please note that, although this project may raise awareness of the issues faced by the invisibly ill, the aim of this project is to raise enough money to produce this unique book because stories like this are currently non-existent.
Not only do you get to feel good about helping share the story of those with invisible illnesses, you also get some amazing rewards:
Update Monday 10 March: Spoonie Survival Kit and School Class Pack Now Available... Get in Quick, Limited Quantities
We believe in this project and we believe in you!
Please join us by donating to the "Foggy Frog and the Pain Gang" campaign.
Let's work together in making invisible illnesses visible! TWEET THIS
How Does Kickstarter Work?
It's pretty simple:
- We set a goal
- We set a deadline (March 28)
- You pledge whatever you can to help us reach that goal.
- Bigger pledges get bigger rewards from us (like a beautiful and unique handmade ukulele for example)
- If we reach (or hopefully far exceed) our goal by the deadline, your credit card is charged, we get our funding, and you get the cool reward you chose.
- If we don't reach our goal by the deadline, your credit card is NOT charged, and you do NOT get the cool rewards.
- It's okay to exceed our goal (in which case we can reach an even wider audience) but it's NOT okay to make even a penny less than our goal.
- Basically, we have to make our goal by the deadline, or we don't get our funding, and you don't get your rewards.
If you have any questions about the project or where your money is going, or if you have any ideas or suggestions on how we could collaborate, please get in touch. You can contact Megan at firstname.lastname@example.org.
Questions sent to Megan will be answered directly and through the FAQ's section of this page to allow everyone to see the answers.
Risks and challenges
The major risk to this project, once funded, is obviously health. I have several chronic illnesses myself, as does many of the members in my support team, and they're not always predictable. We have tried to address this by having leeway in the timeline to account for any delays. However, if there is a major health issue that impacts on the project we will keep all our backers informed through project updates.
Another risk would be overselling product based on our budget (we have budgeted for 250 paperback books to be produced). To minimise this risk we have limited the number of rewards available at each pledge level. We will closely monitor the campaign and will provide additional rewards (e.g. additional copies of the book) if we reach the funds required to produce them.Learn about accountability on Kickstarter
- (26 days)