"Dementia affects every family differently – which is why we wanted to create a children's book that was relevant to your family's situation."
Dementia can be difficult enough for an adult to comprehend – so how do you explain it to a six year old? The Ally Bally Bee Project is on a mission to create the world's first personalised children's book about dementia. A book where character names and dementia-related behavioural traits are tailored to your situation. Maybe you want to explain Nana's dementia to little Sophie or perhaps you want to help little Leo understand why his Uncle sometimes acts the way he does. The Ally Bally Bee Project is on a mission to make such difficult conversations a little easier.
(If we reach our Kickstarter fundraising target) our website will allow you to customise your own children's book about dementia. Simply visit allyballybee.org; tell us who the book is for; who the person living with dementia is; and how the dementia affects their behaviour. Then, with a few clicks, you will be able to order your beautifully illustrated book to be delivered anywhere in the world (or download it as an E-book). You'll also be offered the opportunity to write a short dedication on the inside cover.
Profits from each book sold will be donated to a dementia organisation of your choice.*
Where did the idea for a personalised children's book about dementia come from?
The idea of creating a personalised children’s book about dementia came to me about two years ago. Nina’s grandmother had been diagnosed with Alzheimer’s and I recall one evening, sitting around the table with the family, discussing the way her gran had been acting and the things she had been saying. It was tricky enough for us adults to make sense of – so how would a child make sense of it? It got me thinking: how would I explain granny’s dementia to my daughter?
The question “how do you explain dementia to a six year old?” stuck with me and has formed the basis of the project’s mission ever since. Children's books about dementia do exist. And personalised children's books exist. We decided to combine the two.
The story so far...
For the past two years, Matthew, Nina, Lana, Elvira and Daisy (click our bio above to meet the team) have been working hard to create the world's first personalised children's book about dementia. From the (almost) 16,000 Twitter followers to presenting at the Alzheimer Europe Conference (Denmark) in 2016 – our project continues to grow.
But we need your help.
Please watch our Kickstarter video above, share it with friends, family and colleagues – and (if you can) donate. We need to raise £3,000 to help complete the project website and allow for our book to be personalised online. WE CAN'T DO IT WITHOUT YOU. Together, we can help make those difficult conversations a little easier.
Find out more at allyballybee.org
*"Profits from each book sold" refers only to books sold after the Kickstarter campaign has ended. All funds raised during the Kickstarter campaign will be used to complete project website and develop the project further.
Risks and challenges
Every project comes with its own unique risks and challenges. Matthew, Project Founder, has experienced many over the past two years of working on The Ally Bally Bee Project – but his project management experience and determination has kept the project on track.
Matthew is a Digital Marketing Manager who has worked in the UK charity sector for more than six years. Throughout his career, he has project managed multiple large-scale digital projects – all of which came with their own risks (and required budget management, strategic marketing and time management skills).
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