Balancing medical treatment while providing at-home care can be a daunting task for anyone facing a cancer diagnosis. I began developing the Symptom Management Workbook not long after my mom began enduring numerous chemo treatments for pancreatic cancer. She was a 2 ½ year survivor fortunate enough to overcome the grim statistics- an amazing feat for anyone with this particular cancer. For those who are not familiar with the term “caregiver”, the term relates to someone who takes on the responsibility for caring for a child or dependent adult, often assisting in the management of illness especially in the home. After my mom’s diagnosis I immediately returned home to care for her to the best of my ability. On one particular evening we’d reached the point of crisis mode; I was overwhelmed by everything I needed to do just so my sister and I could offer her some relief as quickly as humanly possible. I reached for the nearest sheet of paper, which turned out to be the back of an old envelope and I began recording the details of ever symptom, side effect, and remedy. Rather than losing myself in the moment, that sheet allowed me to collect myself, gain some perspective, and make clearer decisions for whatever came next. We made it through that long night, and what started out as a tossed aside envelope soon evolved into the Symptom Management Workbook. That very first sheet offered me a sense of peace and organization in the face of chaos. The Symptom Management Workbook is a compact, user friendly, customized binder that includes daily symptom management sheets and multiple sections to track and record vital medical information throughout treatment cycles. With my own funds I've developed prototypes and made them available to a group of caregivers, patients, and medical staff to critique. The Symptom Management Workbook has been designed, tried & tested, and proven to be an effective and unique resource. I've created this book to finally offer a way to help empower and motivate all individuals who want to improve the quality of their lives and the lives of their loved ones throughout their cancer journey. Now I need your help to raise the funds to print this amazing workbook. HELP MAKE SYMPTOM MANAGEMENT WORKBOOKS AVAILABLE TO PATIENTS & CAREGIVERS WHO NEED THEM NOW!
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Share in our journey and learn more about how the Symptom Management Workbook was created, who supports it and why.
Creating The Symptom Management Workbook was a genuine labor of love for my mom- SHE is my inspiration. I will continue to pour my heart & hard work into making this project a success because of the amazing response this workbook has received from those who continue to battle a cancer diagnosis on a day-to-day basis. Their strength and resilience amazes me beyond words!
• Improve quality of life for both the patient and caregiver alike
• Empower patients, caregivers, & loved ones as active participants throughout treatment
• Enhance Doctor-Patient-Caregiver communication
• Encourage unique symptom management techniques
• Increase awareness of each patient’s home care needs
PROJECT ACTION PLAN:
An Exciting Start...! I have been offered the amazing opportunity to launch a program focused on using Symptom Management Workbooks for adult patients & caregivers at an amazing cancer foundation. In addition, I was recently invited to participate in an event to raise money for children diagnosed with cancer and other life threatening diseases. Care Chronicles now has an amazing opportunity to introduce a personalized, fun, interactive, and effective version for children and their parents. The funds raised from my project will go to printing and producing the workbooks, the interactive fun packs for children, and refills for patients continuing treatment.
PLEASE HELP US SURPASS OUR GOAL!
• $ 8,000 Cost to print ½ an order of workbooks
• $11,000 Cost to print ½ order of workbooks...Includes interactive fun packs for children!
• $17,000 Cost to print 1 FULL order of workbooks
• $20,000 Cost to print 1 FULL order of workbooks...Includes interactive fun packs for children!
• $25,000 Cost to print 1 FULL order of workbooks...Includes interactive fun packs for children AND the very necessary binder refills!
With the Symptom Management Workbook, patients, caregivers, and loved ones no longer have to shuffle from their homes to appointments with cluttered stacks of notes, appointment cards, frantically scribbled questions, and contact information! Each workbook section is tailored to serve these daily needs and much more. Our goal is to provide patients with a tool to use throughout treatment cycles, that will help them participate in their care at home and BEYOND THE DOOR'S OF THE ONCOLOGIST's OFFICE!
COMING VERY SOON! http://www.carechronicles.com/
- (89 days)