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A horrible disease, a meaningful love story.
A horrible disease, a meaningful love story.
457 backers pledged $35,268 to help bring this project to life.

About this project

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$35,268

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In the summer of 2011, at the age of twenty-nine, Steve Dezember was diagnosed with ALS (Amyotrophic lateral sclerosis or Lou Gehrig's Disease). The doctors told Steve that he probably had two to five years to live.

After the diagnosis was confirmed by a second opinion, Steve took his girlfriend of six months to their "spot" on the Chattahoochee riverbank just north of Atlanta. Small box in pocket, he took her by the hand and told her, "Look, I completely understand if you go . . . but if you don't, will you marry me?"

Her name, was Hope.

When filming began, we thought we were making a film to benefit future ALS patients. With Hope by his side, Steve would candidly tell the camera (a future audience) what to expect from the disease and how to combat it with certain "tricks" or medical advantages. However, as filming progressed, and Steve's condition worsened, we (the filmmakers) came to realize that ALS was a secondary character in film about two young people who from the outset, decided to try their very best to not let an incurable, terminal, and debilitating disease rob them of their wild love for each other or the chance to lead significant lives.

The documentary follows the newlyweds as they plow through a collaborative bucket-list while Steve still is able to eat, breath, talk and move on his own. We get to see a PG version of Hope and Steve's honey-moon, their road trip across the country, and on-stage invitations from popular musicians such as Michael Franti, Gareth Asher, and Dave Matthews.

Despite the good times, the disease progressed quickly and Hope had to face the incredible challenge of being both Steve's wife and his full-time caretaker. And the once tenacious, joke-cracking, and initially optimistic Steve had to come to terms that he would spend the rest of his life relying on his wife to fight all of his physical battles for him.

Through social media, local news channels, and old friends, news spread quickly about the couple who with no income and minimal medicare, were trying to squeeze a lifetime of living into a couple years. An Atlantan community rallied behind the couple, organizing fund-raisers ranging from art shows, concerts, hockey games, and golf tournaments.

This film is an excruciating and piercing love story that at times is as baffling and beyond human understanding as the book of JOB, and at times as plainly joyful as the concluding scene of "It's a Wonderful Life".

___

This has been a project of passion for the previous two years. Both the director and I knew Steve through either high school hockey teams or college dorms. 

In order to compete this is what we still need.

Post-production: $9,200

Licensing fees: $8,000

Scoring: $3,000

Proper Format and Coloring: $2,600

P.R./Marketing: $4,400

Film Festival Entry Fees and associated costs: $2,000

Fulfilling Kickstarter Rewards: $800

Risks and challenges

The risk is not getting our film accepted into a major film festival or finding effective distribution.

We are confident in the story we are telling and the people telling the story. What we lack in bells and whistles we make up for in industry experience and originality.

We have a HUGE social media presence and with pushes from musical celebrities like MICHAEL FRANTI (who is heavily involved with the project) and DAVE MATTHEWS (who has reached out to the couple and drawn them personalized artwork) our documentary will reach people with or without the festivals and traditional exposures.

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  1. Select this reward

    Pledge $15 or more About $15

    Any pledge over $15 will receive a personalized shout out and thanks from the filmmakers on our Facebook page. (Unless of course, you'd rather remain anonymous.)

    EX - @Marvin and @Mary from Maryland just pledged $ to our project. (Amount will not be specified.) Their donation will help us properly color some of the footage that had to be shot on mobile devices. Marvin and Mary, we're thrilled that you're apart of this project.

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    Pledge $30 or more About $30

    Upon completion of our project, you will be mailed a bounded copy of the Hope for Steve DVD. You will also receive a personal thank you call from the producers and an update on the project.

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    Pledge $100 or more About $100

    For any pledge $100 or more, you will receive a "Special Thanks" in the credits. Upon completion of the film, you will be mailed a copy of the Hope for Steve DVD. You will also receive an invitation to the Atlanta premiere of the film. You must cover your own travel experiences.

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    Pledge $1,000 or more About $1,000

    For any pledge more than $1000, your name will be in the credits as an executive producer. Upon completion of our project, you will also receive a DVD of the film, an invitation to our premiere, and the opportunity to meet the filmmakers and Hope and Steve.

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Funding period

- (46 days)