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A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.


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    1. Missing avatar

      Liz Burlingame on

      You are speaking out for those of us too sick to do so. THANK YOU! Just Go, Go, Go -- you have so many ME/CFS patients behind you!

    2. Eddy Keuninckx on

      Well done, you deserve that reward. Cheers from Belgium!

    3. Ginny Martin Fleming on

      Congratulations, Jennifer! As a PWC (Person with CFIDS) for more than 24 years now, who has tried to promote our cause in my own small ways, I thank you from the bottom of my heart, and from the warm covers of my bed! xo

    4. Kathryn Stephens on

      Brilliance should never be embarrassed. You and your crew deserve this recognition. I will anxiously and gladly await the launch of the new project: building bridges can be vital in promoting better health for all of us!

    5. Missing avatar

      Carla Hurley on

      Congratulations Jennifer! You are such an inspiration! I really want to advocate for Xyrem and Xyrem studies for CFS/ME but I have no idea how to get started. I have seen countless people get at least 40% better on it but there are even more people who are denied for this medication by their insurance company because it has only been approved for narcolepsy. I was once bedridden but no longer am due to Xyrem. It could be taken away from me at anytime and I would once again be bedridden. I don't want to take away from your miraculous work which I'm so excited about! I just thought you or other members might have suggestions on how I might advocate on our behalf with this medication! Thanks for everything! Hugs!

    6. Missing avatar

      Janet Furcht on

      Congratulations! The award is well deserved.

    7. Patricia Carter on

      Congratulations, Jennifer! You certainly deserve this award. 'Canary in a Coal Mine' is giving me hope for progress with M.E. Thank you for all your work.

      Patricia Carter

    8. Missing avatar

      Earl Davis on

      hi Jennifer - Congratulations. Since I am a similar sufferer of mysterious long-time cfs symptoms - I was looking forward to talk with Howard Bloom to learn his own 'cure' protocol.
      This was his promised reward at the pledge level I contributed and I have never heard any follow through on this. Please advise... thanks, Earl Davis

    9. Jared Chung on

      Wow this is fantastic! So exciting