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A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.
Lisa Catherwood, Merry Speece, and 43 more people like this update.


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    1. Missing avatar

      Sue Grubman on

      Thank you for providing an interview describing this horrible illness. I have forwarded the clip to my state representatives. I hope they watch. It is appalling there has not been more funding.

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      Daniel H on

      Thank you so much, Jen! This was a very well written piece of television. It is amazing to see, that the media finally takes the issue of this terrible illness seriously. And thank you for your extraordinary courage. To show yourself as weak and vulnerable as you are, must be very hard.

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      Kim Cofield on

      Congratulations on the coverage! I hope it goes some way to helping people understand M.E.

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      Donna Scribner on

      Way to go Jen!! THANK YOU, THANK YOU, THANK YOU to you and Al Jazeera!

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      Lauren on

      Great that the media is finally covering ME/CFS in a responsible way and that is a BIG thanks to you guys!! Online support groups have been following the documentary and its media progress closely.

    6. Deanna Nielson on

      Great job, Jen and Al Jazeera! While brief, the segment showed that the disease isn't "just in your head" and is truly devastating to daily life. I can't thank you enough for your willingness to speak out and lead this effort to draw attention from the medical community and others to recognize "Chronic Fatigue Syndrome" (which, unfortunately, is easier to say than "Myalgic Encephalomyelitis").