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A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.

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    1. Missing avatar

      Danette Madonna on

      Thank you Jen and everyone else for bringing this misunderstood disease to light. I'm so frustrated & tired- no pun intended- of people not understanding what this is like to live with on a daily basis, how difficult it is to not be able to take care of my husband & 2 daughters like I need to ( some days I don't even know how we get thru ) It's hard enough living with this disease, but then to have only a FEW people truly see & understand what u go thru is devastating almost as much as the disease itself!!!!! I've had so many people tell me that I'm depressed, lazy, just don't want to work, it's in my head- u just need to push yourself more- I just felt like screaming from the mountains- people it's a freaking DISEASE!!! So thank you from the bottom of my heart, I'm so proud of you for having the energy & drive to make this happen. I'm a fighter as well & if you need anything I'm here for you and everyone else suffering from M.E Take care of yourself. Get some rest and downtime with your hubby! XOXO

    2. Anne LiConti on

      Thankyou for the update Jen. You are a Godsend to all of us. I think you are doing a great job and I think this can done with your proposed budget. Nothing is impossible!
      Years ago we didnt have all of this social media, etc.. to do something like this. Even though we chatted in the chatroom, we didnt have this large of an audience. Thankyou so much for doing what you are doing and God bless you and your husband! :)

    3. Ginny Martin Fleming on

      Thanks for the update. With some knowledge of similar ventures, I think this is a doable project and applaud you for whatever you can do to see it through to completion within the budget and timeframe. There are always more and more things you can add, hone, edit, show, but, in my opinion, getting the film out in a timely fashion using the resources you have to work with will be important. Use those of us who can offer assistance and our resources! Let us know what you need along the way! :) Thanks for your efforts - do take care of yourselves!

    4. Patricia Carter on

      Thank you for posting this update. I don't know much about the film industry. All I see are the news reports and they are always about how many millions were spent on the movie. I am surprised that you are going to be able to make this film for $250,000. I would have thought it would take more money--but I'm happy that you are! You must really know how to manage the financial aspects of this. I am grateful to you for making this film and making the truth about M.E. public.

    5. Missing avatar

      Jen Cashin on

      great effort, keep going

    6. Eddy Keuninckx on

      I like transparancy... <3

    7. Missing avatar

      deborah Hoffmann on

      As a long time documentary filmmaker I can assure everyone this is an extremely modest budget.