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A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.
Kealie Mardell, Rebecca Hansen, and 5 more people like this update.

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    1. Missing avatar

      Nathalie May on

      Jennifer, thank you so much for doing this!!!! You are my hero!! Looking at the footage of youre struggles makes me cry!! You are like a mirror image of ME. In the fall of 2009 I suddenly became very ill and within 10 months I was in a wheelchair, spent three years mostly bedridden, fully housebound, some days spoon fed, crawling to bathroom, unable to read or use my eyes and ears for anything. Because of my amazing doctors, Andreas Kogelnik from the Open medicine Institute in California and my local ME doctor, Dr. Ellie stein in Calgary Alberta I am starting to live again. Reactivated EBV and HHV6 looking like the possible culprits of my ME, I am one of the lucky people getting better on Valcyte. I can now walk about 200 steps on a good day and I have also started to drive a little, first time in three years!! Thanks so much for making a movie that will show that we are not "just tired"!! Some days I even wish I had a normal, accepted and understood illness instead of this cruel, alive but not aloud to live, type of illness. I look forward to meeting you at the screening!!! Nathalie May, Calgary, Alberta