Share this project

Done

Share this project

Done
A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.
Donna Scribner, Gwen, and 16 more people like this update.

Comments

Only backers can post comments. Log In
    1. Overnight Musicals on

      Thrilled at all you are accomplishing Jen! Cheering for you from NYC!!!

    2. Missing avatar

      Penelope Del Fante on

      Always encouraged by what you are achieving Jen. Thank you so much.
      A good opportunity to kickstart the name SEID(+s for ease) Acquired Immune deficiency Syndrome (AIDS) was a mouthful but everyone gets that.
      Perhaps it is also a good opportunity to kickstart a challenge...
      All the best for Monday.

    3. Missing avatar

      Jeff Barson on

      Congrats Jen! Hope you're feeling strong on Monday.

    4. Missing avatar

      jean harrison on

      Great news. You make a fine spokesperson.

    5. Tisha Bratt on

      Brilliant!! I think the new name is quite a discussion point - I think it's far better than chronic fatigue - if I had a pound (or a dollar) for all the times people have said they get tired too - I would be a rich woman!! Well done Jen - and loving the updates xx

    6. Gwen on

      Fantastic! Good luck : )