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A film about life with ME, the world's most prevalent orphan disease.
A film about life with ME, the world's most prevalent orphan disease.
2,593 backers pledged $212,962 to help bring this project to life.
Eileen Wasow, Chris Messina, and 80 more people like this update.

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    1. Marilyn Pope Taylor on

      I love all of you for this work you are doing and continue to do and learn about so this film gets out there to make it's impact. I give you all virtual hugs and to you Jennifer I give you a very light embrace on your best day and tell you YOU MATTER.

    2. Jennifer Brea 2-time creator on

      Hi Kathleen – there are some really great forums out there. You might try http://forums.phoenixrising.me or http://healclick.com

    3. Kathleen Vaillancourt on

      Jen,
      You are an amazing woman, and an inspiration to all of us in the community. As I noted your techniques for pacing, I couldn't help but think how great it would be to have a forum in which we could share our approaches to dealing with the disease. Have you had any thoughts about this? If so please let us know. I would be happy to help in anyway possible with an effort to collaboratively communicate treatments. Thank you for your hard work.

    4. Gwen on

      So glad you all had this very inspiring and motivating experience. It must have been amazing! And, as I let what you wrote sink in, especially your thanks to your producers and universe management man I get a little misty. Take time to breathe now, get rest and take time out for each other too : )

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      Esther Siebert on

      With the IOM report just out, this will need to be incorporated in the film now of course. I don't know how far out release is at this point, but publicity wise it would be ideal if the Laura Hillenbrand story followed the IOM report would be followed as quickly as possible with Canaries, keeping up public awareness while we try to raise money.