My name is Edward, and I'm a type 1 diabetic and a photographer. I'm currently trying to get my story out about a book I'm working on.
In college, I presented a very personal thesis centered on living with diabetes, and the end result was phenomenal! The project contained six images and a video depicting how my world has been affected because of my positive diagnosis. Although I had to call my thesis “done” at the end of the semester, I realized my work wasn’t really finished. I wanted to keep going, but at the same time, I felt that my place as a subject was complete. My father, after discussing my project, helped me realize that I needed more faces, more stories, more lives—an entire book full. This book is my new project.
I have gathered a very long list of people who want to tell their own stories through images in my book. I’ve generated interest and some artwork already, and I need to push forward. My next step is to gather funding so that I can travel from place to place to collect photographs of my storytellers. Once I have captured a sufficient amount of story artwork, I intend to publish the book so that the message of these individuals can reach as many people as possible. Theres also thoughts of making a blog as well as other supporting projects to help make this project a reality.
I remember the day I was diagnosed with diabetes. Since I had a loved one with diabetes, I had witnessed firsthand violent seizures, the frightening swings of low blood and high blood sugars, and every one of the frequently-overlooked daily troubles of living with this illness. When the doctors confirmed that I had diabetes, I was only eleven years old, and I nearly lost my mind. I was a wreck. Suddenly, I was trapped in my own body, staring down the barrel of a future of nothing but the debilitating problems I had already been seeing my entire life. I had to learn very slowly that I was wrong, and now I want to show kids as well as adults that this disease will not stop you from living your life as you want to live it.
If you want to be in the book or are interested in the project send me an email! TheFacesofDiabetes@gmail.com
Risks and challenges
Some challenges this project faces is viewer response or being overwhelmed by people who want to share their story. I would love to get to everyone that wants to be a part of this project and I aim to get as many people as possible regardless of their location! I would love to get people from every state in the United States if possible.
I'm also very concerned about funding! Shocker right, but seriously without the money to get the project done, spread awareness, and tell peoples stories I feel this project will be buried and that would absolutely crush me as well as let so many other people who are looking forward to this down. I've already talked to several JDRF organization as well as the local news station and I won't stop there.
Another challenge I would personally like to face is how I would make images that aren't all the same or similar. Sure, some will look identical but each image should have a different feeling, and story to go along with it.
Due to the fact that this is my first publishing project the first round of books I will fund myself. Before these books go to print I will hire a copy editor to review the page proofs and make changes as needed. I have several professional options as to who I could hire as a copy editor. After I receive the first round of printed books I will send copies to the backers as well as several different publishing companies. A few of the publishing companies I plan to reach out to are St. Martin's Press, Peachpit, Aperture, Publishers Weekly and local publishers around the state. If a publisher does not pick up the project for distribution I can continue to self publish and market independently until I find a publisher. When it comes to the actual printing of the book I have developed relationships with several independent printing companies that I have used for past projects.
I can't let this many people down especially since I'm so involved with a specific diabetic community. This is much bigger than me and a handful of diabetics. I'm hoping this changes the way people look at type 1 diabetes.
With my trusty Jeep and camera I will tackle this project...One photo and story at a time...and who knows...Maybe when the I get stared it will be something that NEVER stops.
If this project gets funding all backers will also receive behind the scenes videos showing shoots, progress on how the book is coming along, and other various riff raff.Learn about accountability on Kickstarter
Have a question? If the info above doesn't help, you can ask the project creator directly.
Support this project
- (30 days)