About this project
We are thrilled to be making national news!
Check us out in THE WASHINGTON POST and our interview on SiriusXM.
This Kickstarter campaign is raising funds to finish To the Edge of the Sky, a documentary about parents fighting to stop Duchenne Muscular Dystrophy before it kills their sons. New drugs are on the horizon to treat this deadly disease–and many other rare diseases–but the treatments are stalled at the FDA.
We are completing this film as soon as possible to help families across all rare disease communities as they battle to gain access to potentially life-saving drugs.
Imagine if, as a parent, you were destined to outlive your child. Imagine if, after years of watching your child struggle with a rapidly progressing deadly disease, a new drug offered you the hope of halting its progress. What would you do to obtain this drug for your child? What would you do to save your child’s life?
To the Edge of the Sky offers an unflinching portrait of families going through just that, and doing whatever it takes to save their sons’ lives.
A deadly disease and the possibility of a cure.
In the early phase of the disease, a boy with Duchenne will fall down more than most. Routine tasks will seem exhausting. Between the ages of 6 and 12, he will have trouble walking. He may compensate by walking on the balls of his feet or toes.
By age 12, the deterioration will begin to accelerate, and he will most likely need a motorized wheel chair. By the early teens, he will develop heart muscle problems, which will lead to heart and respiratory complications.
In almost all cases, he will die before his mid/late 20s.
Promising new drugs offer the hope of possibly treating Duchenne. However, these drugs remain stalled at the FDA. As a result, only a limited number of boys who are enrolled in specific clinical trials have access to them.
Our film follows four families with sons dying of Duchenne as they wage an extraordinary campaign to convince the FDA to allow the accelerated approval for a drug they believe is a potential cure for Duchenne––before it kills their sons.
With incredible access to the families, legislators, and FDA, our documentary presents the day-to-day combat and strategizing required to get the government and public-at-large to pay attention to any disease, let alone one that affects just a few thousand kids yet creates tremendous devastation.
Beyond that, at the heart of this political drama is an incredibly poignant and human narrative: the tireless battles that parents fight to protect their kids. These parents will do anything to save their sons. They'll go to the ends of the earth, to the edge of the sky.
We are racing against the clock.
Our heroes: FDA success stories.The unknown becomes known when enough attention is paid to it. Our cause needs more allies.
The Cystic Fibrosis community worked tirelessly to get approval for a promising experimental drug. It took years of stalling, negotiations, and review before the FDA gave the green light for this drug which proved to be effective.
Like these communities, the parents in our film have been working tirelessly getting petitions signed, meeting with the media, and presenting information to the public. Now they need your support. Together, we can stop the stalling and start saving lives.
Many of our films have led to change.
Who we are.
In the past twelve years, we have produced numerous critically and commercially successful feature documentary films including the multiple Primetime Emmy Award-winning film Mea Maxima Culpa: Silence in the House of God (2012, HBO), the 2008 Academy Award Winner for Best Documentary and Emmy Award Winner for Best Documentary, Taxi to the Dark Side (HBO), the Emmy-nominated Semper Fi: Always Faithful (2011), the 2012 Academy Award Nominee for Best Documentary Short, King's Point (HBO), the multiple Emmy-nominated Client 9: The Rise and Fall of Eliot Spitzer (2010), the 2008 Sundance favorite Kicking It (ESPN), the POV film A Dream in Doubt (2007), Morgan Spurlock’s What Would Jesus Buy? (2007), and the critically acclaimed Beyond Conviction (2006, MSNBC).
In 2011, we were each nominated by the Producers Guild of America for Outstanding Producer of Documentary Theatrical Motion Pictures.
Join us, and consider your pledge signing a petition.
Risks and challenges
Our biggest risk is that this film will not be funded, and that these boys and their families will not receive the help they need in time.
Logistically speaking, if the campaign is funded, the only delays we foresee are the delivery of DVDs and the availability of digital delivery per the terms of the agreement with our distributor.
All delivery dates are estimates and subject to change at any time.
That said, all non-film related rewards should be fulfilled by October 2015, or possibly before that time.Learn about accountability on Kickstarter
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