I'm afraid that a lot of my project description and autobiography will be somewhat similar, as it's all rather intertwined!
My name is Helen, and I have Ehlers Danlos Syndrome, a genetic condition that causes my joints to subluxate and dislocate. As a result of how difficult my condition became, I began working with clay as I couldn't return to my previous job.
That was roughly two years ago, and it's been pleasantly surprising realising how much people like my work. I've now been part of three Open Exhibitions, and have my own studio in Pie Factory Studios, Margate. I feel very lucky that I have found something that I can work on regardless of how my disability affects me and I would like to document this journey and hopefully give something back to the Ehlers Danlos community and to all who have helped me over the past two years.
I would like to put on an exhibition in my local area to raise awareness of Ehlers Danlos Syndrome, and make what is currently an 'invisible' disability both visible and actual. To do this I need help to be able to purchase a disability friendly wheel (it's pretty much impossible for me to be able to use my manual one now), to complete setting up a modified studio so that I can fire larger items, produce at least three months work (which for someone with wandering joints takes just a 'little' bit longer than three months, hence me doing this way ahead of time!) and pay for materials, gallery, opening night and promotional costs. I have set my target based on what it will cost me to set up and produce one local exhibition; if by the efforts of you wondrous people this exceeds target, the further funding will go towards moving the exhibition around the country, to raise awareness of Ehlers Danlos Syndrome nationally.
I'm doing this via Kickstarter as I'm really hoping to make this a community experience. All donations will include an invitation to the opening night of the exhibition, and all Rewards have been thought out so as to include people in the exhibition in a very real and present way.
Thank you so much for taking the time to look at this project, I am massively grateful to you. For those of you who choose to donate, you have my huge thanks and appreciation, and I hope very much to see you at the opening night (if we manage to hit target! :D )
Risks and challenges
My main challenge for this project will be my joints. I reduce and manage the dislocations and subluxations with supports, but when significant joints move out of place it is extremely disabling. However, I am now well used to my disability and this is why I have set aside over three times the amount of time that I think I will need to produce my planned works for the exhibition.Learn about accountability on Kickstarter
- (30 days)