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Traditional rehab for paralysis recovery doesn’t work. This is our solution packaged in a training manual for clients and trainers to learn together.
Traditional rehab for paralysis recovery doesn’t work. This is our solution packaged in a training manual for clients and trainers to learn together.
202 backers pledged $32,706 to help bring this project to life.

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Movement After Paralysis - Pilates for Spinal Cord Injury

$32,706

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From Theo: 

I endured a cervical spinal cord injury during my freshman year in Mechanical Engineering at MIT in 2013. At the most exciting point in my life, my entire future was suddenly thrown into question.

Over the last four years have been a process of reconnection and self-discovery I could never have imagined. After leaving in-patient rehabilitation at the hospital, I returned home to California looking for longer-term, intense therapy options closer to home.

I have gained connection to my body in ways I never thought were possible after spinal cord injury - I'm not walking yet, but I do drive, travel, cook, bike, perform long-distance open-water swims, function completely independently, and most importantly, I feel really connected to a body that has had its movement patterns completely reprogrammed.

From Stephanie: 

Working with spinal cord injury was supposed to be a temporary venture while I applied for graduate programs in Public Health. I started working at an exercise-based SCI training facility after graduating from UC Davis in 2011. I was a really slow learner and I wanted to quit everyday for the first three months. I'm not sure exactly what it was, but something clicked for me and I was hooked on the constant creative problem solving, the endless gratitude from my clients, and the huge family I was now part of.

I started working with Theo in early 2014 and I can truly say that it was the first time that I felt the collaborative nature of teamwork from a client. Together, we were figuring out what paralysis recovery actually required.

After 5 years of working and managing this facility, I was suffering from work-related back pain. I had two options: quit and pursue another career path, or find a better method. With Theo as one of my first clients, I started a Pilates-based SCI Recovery program at nearby Pilates studio in 2015. Since then, Theo and I continue to explore, discover and be fueled by the excitement of recovery after paralysis.

You can read more about our bios and credentials here

Thank you!

Wow. You made it all the way down here. You must be looking for some inspiring words. We may not have those, but here’s an excerpt from the introduction of our first edition:

Links

Zebrafish Neuro Website 

Facebook 

YouTube 

Theo’s Instagram 

Stephanie’s Instagram 

Theo’s Blog

Sources

https://www.nscisc.uab.edu/Public/Facts%202016.pdf

Risks and challenges

We have everything we need to make this book, but it would take a long time. And be much less organized, graphically unpleasing, and definitely fall short of our vision. We are committed to making it great and won't settle for less than amazing!

With our crowdfunding goal, these funds cover ONLY the final copyediting, graphics, media, Kickstarter fees and rewards fulfillment. These funds do not cover the time, energy and academic resources used to create the CONTENT of the manual (that's coming from us!).

Therefore, we are restricted in time input by the nature of 1.) Stephanie's need to continue to work full-time, and 2.) Theo's full-time commitment to his recovery and return to MIT in Fall 2018. We are confident that we will be able to produce the 2nd Edition of the manual by May 2018, but do realize that we want the text to be the best it can be and will allow ourselves the wiggle room for a better composition if need be. We will be sure to update backers and followers with expectations. We ask that you be patient if our projection draws out a bit.

Our estimation of rates for copyeditors, graphic designers, printers, and photographers were based on a 2-3 professionals offering the best advice they could. Sometimes projects take more capital than estimated. We will be responsible for adjusting budget allocation, timeline and raising any additional funds needed to ensure the success of the project.

We hope you understand the deep impact our project will have on individuals living with paralysis. Thank you for your support!

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Questions about this project? Check out the FAQ

Support

  1. Select this reward

    Pledge $1 or more About $1.00

    Ask a Question!

    Your support is small yet mighty. Submit a question to the Zebrafish team, which may be selected and answered as a campaign FAQ or on one of our social media posts!

    Includes:
    • Ask a Question
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  2. Select this reward

    Pledge $2 or more About $2.00

    Contribution of Professional Skills

    If you would like to support the development of this project through your professional expertise, we will be requiring work in the following areas:
    -Photographers
    -Videographers
    -Movement Professional consults
    -Physical Therapist consults
    -Graphic designers

    Please contact us to discuss how you might contribute to this project!

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  3. Select this reward

    Pledge $25 or more About $25

    School of Zebrafish

    Thank you for your contribution! This project will have a profound therapeutic impact on those living with paralysis.

    You will receive a digital Certificate of Zebrafish, along with a giant Thank You.

    In addition, you will be recognized on our website on a special Thank You page and in a special section of the 2nd edition. You will be emailed a link for your information after the campaign.

    Includes:
    • Your name on the Zebrafish Backer Wall & in the manual
    • Certificate of Zebrafish
    • Zebrafish sticker
    • Thank you card
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    Ships to Anywhere in the world
    26 backers
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  4. Select this reward

    Pledge $50 or more About $50

    Movement Class with Stephanie

    Take our KICKSTARTER BACKERS EXCLUSIVE Pilates Mat class with Stephanie! Your body will thank you for it.

    This 60-minute class will guide you to improve flexibility, strength, and core stability. This class is multi-leveled, starting with the basics and layers on options to challenge you where you need.

    All levels welcome, no equipment needed except your Mat.

    Video links will be sent via email after the campaign.

    Includes:
    • 60 Minute Mat Pilates Class video
    • Your name on the Zebrafish Backer Wall & in the manual
    • Certificate of Zebrafish
    • Thank you card
    • Zebrafish sticker
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    Ships to Anywhere in the world
    33 backers
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    Pledge $50 or more About $50

    Manual Pre-Order VIP SUPER Early Bird

    Grab it now for a limited time!

    Pre-order the 2nd Edition of Pilates for Spinal Cord Injuries: Techniques to Facilitate Neurologic Connection (expected retail $165).

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • Certificate of Zebrafish
    • Thank you card
    • Zebrafish sticker
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    Ships to Anywhere in the world
    Reward no longer available 7 backers
    $
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  6. Reward no longer available

    Pledge $135 or more About $135

    Manual Pre-Order SPECIAL Early Bird

    Pre-order the 2nd Edition of Pilates for Spinal Cord Injuries: Techniques to Facilitate Neurologic Connection (expected retail $165).

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • Certificate of Zebrafish
    • Thank you card
    • Zebrafish sticker
    Less
    Estimated delivery
    Ships to Anywhere in the world
    Reward no longer available 10 backers
    $
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  7. Select this reward

    Pledge $150 or more About $150

    Manual Pre-Order

    Pre-order the 2nd Edition of Pilates for Spinal Cord Injuries: Techniques to Facilitate Neurologic Connection (expected retail $165).

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • Thank you card
    • Zebrafish sticker
    Less
    Estimated delivery
    Ships to Anywhere in the world
    38 backers
    $
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  8. Select this reward

    Pledge $180 or more About $180

    Manual Pre-Order + Webinar

    While you wait for your manual, interact with Theo and Stephanie in a 2-hour webinar. The webinar will be broadcast in a Pilates studio for demonstrations of exercises.

    Submit questions prior to webinar for structured discussion for the first hour, then open forum for the second hour. You will be sent a link at the end of the campaign to sign up for Webinars scheduled October through June.

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • 2-Hour Webinar
    • Your name on the Zebrafish Backer Wall & in the manual
    • Thank you card
    • Zebrafish sticker
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    Estimated delivery
    Ships to Anywhere in the world
    13 backers
    $
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  9. Select this reward

    Pledge $181 or more About $181

    SCI Client Model + Manual + Webinar

    Individuals with SCI, debut your modeling career with Zebrafish! Be a model for 3 spreads in the manual displaying exercise set-ups and execution. You will be paired with Stephanie as your trainer for the photos. All injury levels welcome!

    Meet and talk with Stephanie and Theo before and after the photoshoot. The photoshoot will take place in Lafayette, CA in December or January 2018, date TBD. Total Time: 1.5 hours

    WEBINARS:
    While you wait for your manual, interact with Theo and Stephanie in a 2-hour webinar. The webinar will be broadcast in a Pilates studio for demonstrations of exercises.

    Submit questions prior to webinar for structured discussion for the first hour, then open forum for the second hour. You will be sent a link at the end of the campaign to sign up for Webinars scheduled October through June.

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • 2-Hour Webinar
    • Client or Trainer Model
    • Certificate of Zebrafish
    • Thank you card
    • Zebrafish sticker
    Less
    Estimated delivery
    Ships to Anywhere in the world
    Limited 1 backer
    $
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  10. Reward no longer available

    Pledge $181 or more About $181

    TRAINER MODEL + Manual + Webinar

    Movement professionals, debut your modeling career with Zebrafish! Be a model for 3 spreads in the manual displaying exercise set-ups and execution. You will be paired with Theo as your client for the photos.

    Meet and talk with Stephanie and Theo before and after the photoshoot. The photoshoot will take place in Lafayette, CA in December or January 2018, date TBD. Total Time: 1.5 hours

    WEBINARS:
    While you wait for your manual, interact with Theo and Stephanie in a 2-hour webinar. The webinar will be broadcast in a Pilates studio for demonstrations of exercises.

    Submit questions prior to webinar for structured discussion for the first hour, then open forum for the second hour. You will be sent a link at the end of the campaign to sign up for Webinars scheduled October through June.

    Includes:
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • 2-Hour Webinar
    • Client or Trainer Model
    • Certificate of Zebrafish
    • Thank you card
    • Zebrafish sticker
    Less
    Estimated delivery
    Ships to Anywhere in the world
    Reward no longer available 3 backers
    $
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  11. Select this reward

    Pledge $325 or more About $325

    Client/Trainer Combo Pack + Webinar

    With the intention for both clients and trainers to use the manual, we encourage you to purchase your manuals along with your partner in SCI recovery. Work through the material as a collaborative team, learning, exploring and discovering, TOGETHER.

    While you wait for your manual, interact with Theo and Stephanie in a 2-hour webinar. The webinar will be broadcast in a Pilates studio for demonstrations of exercises.

    Submit questions prior to webinar for structured discussion for the first hour, then open forum for the second hour. Links will be sent to backers at the end of the campaign to sign ups for Webinars scheduled October thru June.

    Includes:
    • 2-Hour Webinar
    • 2nd Edition Manual: Pilates for Spinal Cord Injuries
    • Your name on the Zebrafish Backer Wall & in the manual
    • Thank you card
    • Zebrafish sticker
    Less
    Estimated delivery
    Ships to Anywhere in the world
    0 backers
    $
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  12. Select this reward

    Pledge $7,500 or more About $7,500

    20-hour Weekend Workshop at your Studio

    Stephanie & Theo LIVE in your studio! 3-day (F-Sa-Su), 20 (-ish) hours of discussion, movement, hands-on experience with SCI, and a unique learning experience for your local movement community.

    Includes workshop fees and manuals for 10 instructors.

    Date, to be arranged. Travel expenses included within United States.

    Includes:
    • Latest Edition: Pilates for Spinal Cord Injuries
    • 20-Hour Weekend Workshop (3days)
    • 2-Hour Webinar
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    Limited 0 backers
    $
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Funding period

- (23 days)