Share this project


Share this project

Snow on the Brain: Living with Multiple Sclerosis project video thumbnail
Play with
pledged of $10,000 goal
seconds to go

Funding Unsuccessful

This project's funding goal was not reached on April 22, 2012.

Multimedia exhibition by artist Marguerite McDonald and poet Marylou DiPietro.

Boston, MA Mixed Media
Share this project

About this project

Snow on the Brain: Living with Multiple Sclerosis -- A Collaborative Exhibition of Art by Marguerite McDonald and Poetry by Marylou DiPietro

Soon after being diagnosed with MS thirteen years ago, artist Marguerite McDonald began keeping a "visual journal" to interpret the impact of the disease on all aspects of her life, including her art. Poet Marylou DiPietro was immediately drawn to the powerful images, symbols, and emotions in these paintings, which are frank and direct regarding Marguerite's condition. They also affirm life's beauty and meaning.

By speaking through image and word, Snow on the Brain brings art and literature to medical and educational communities while retaining its universal appeal.  The show includes 12 paintings and poems, a poetry reading, and a full-color catalog.  The UrbanArts Institute at MassArt, under Director Ricardo Barreto, leads curatorial planning with the assistance of Madeleine LePere.

Project partner Very Special Arts Massachusetts hosts the show at The Open Door Gallery in Boston from March 19th - May 21st, 2012, with a reception and poetry reading on April 12.

Funding covers the multimedia presentation of this exhibition, including administrative/production costs, framing/mounting, transportation, photography, and catalog production.

Marguerite's paintings contemplate the profound and prosaic effects of a life- changing disease, and explore how the external world and it's toxic agents work their way inside her body and consciousness. The poem Virus begins:          

A single thread escapes from outer space                                                               and finds its way into Marguerite's warm, lush body.

The audience/viewer/reader participates in this journey into a life in flux. The art and the poetry explore and examine people's largest fears, their smallest indignities and the triumph of the human spirit. For example, the poem Acceptance asks:

How does one continue to find the will                                                                           to beat the drum                                                                                                        when the accompaniment has ended?

By speaking for an alienated population, Snow on the Brain connects the worlds of art and literature with medical and educational communities, and the community at large. We learn from the poem titled Ladder that a person's passion and need to create and achieve, should not be defined by an outward infirmity:

Now there are only fine hewn rungs                                                                            held together by this life                                                                                                we are bound to suffer                                                                                                     and transcend.                                                                                          

There are only hands and feet                                                                                       doing what they do best:



  • Yes! Donations made to this project will go directly into the UrbanArts account. UrbanArts Inc., our fiscal sponsor, is a not for profit charitable institution. Your contributions are tax deductible to the full extend of the law.

    Last updated:


  • You selected
    $5 reward

    0 backers

    Personal acknowledgment on our Facebook page.

    Estimated delivery:
  • You selected
    $25 reward

    3 backers

    5 x 7 photo of "Snow on the Brain" signed by the artist

    Estimated delivery:
  • You selected
    $50 reward

    6 backers Limited (194 left of 200)

    DVD of "Snow on the Brain" with a selection of paintings from the show, reading of accompanying poems and original music by Miriam Sharrock.
    Sound production by Voices of Xperience.

    Estimated delivery:
  • You selected
    $75 reward

    1 backer Limited (199 left of 200)

    Full color Exhibition Catalogue of "Snow on the Brain" signed by the artist and poet.

    Estimated delivery:
  • You selected
    $100 reward

    2 backers Limited (98 left of 100)

    13” x 9.5” limited edition Color Gicleé print on Matte Art Paper of "Snow on the Brain" image with poem, signed by the artist and poet.

    Estimated delivery:
  • You selected
    $150 reward

    1 backer Limited (99 left of 100)

    19” x 13” Limited Edition Color Gicleé print on Premium Matte Art Paper of "Ladder" image with poem, signed by the artist and poet.

    Estimated delivery:
  • You selected
    $500 reward

    0 backers Limited (200 left of 200)

    Receive all 6 rewards! Plus be listed as a sponsor of the show.

    Estimated delivery:

Funding period

- (60 days)