Coming of Age with Chronic Illness & Mental Health
This book is about chronic illness, mental health, and other things that can happen while growing up. You can help get this book published!
You might be wondering a few things:
What is this book about?
Simply put, this book is about growing up. It’s about chronic illness and mental health. It’s filled with honesty and truth of the power of me too. It’s full of the positive and the negative- the message of “yes it can suck, but you can do it.”
Why am I writing this?
I was diagnosed with type 1 diabetes when I was seven years old on March 8, 2000. When I was 12 years old, my dad passed away from cancer of unknown sources which changed my life and financial situation. I started blogging in college about life, chronic illness, and mental health at my blog “There’s More to the Story.” I was later diagnosed with ADHD, anxiety, and OCD (symptoms presenting before the age of 12) at 22 years old, and then PCOS and endometriosis at 23. I’ve always wanted to be an author, but I never saw myself writing nonfiction- especially about my life and different diagnoses. After graduating from the University of Georgia in 2015 with a degree in Social Work, I started realizing that a lot of books were focused on one- on one chronic illness- or that the views and experiences were impacted by rose-colored glasses. At the moment (at the age of 22), I decided to write a book. I wanted to finish the content before I turned 24 to keep my experiences fresh and close to what I was feeling at the time.
What am I doing exactly?
Well, I've written a book and am opting to ask for help to get it self-published. I graduated college a little over two years ago and have a social work degree so besides emergency savings, I don't have extra money sitting around to embark on this journey. I've thought long and hard about the decision to go the self-publishing direction. After making lists and asking for advice, I did decide to self-publish and ask for help to make this happen!
What is the funding going towards?
The funding will be going towards the process of self-publishing the book. This includes printing, shipping, editing, and design. I have done a lot to try and make sure I go local, ask for help where it's applicable, and go to the people in my life first (for things like design, editing, etc.). I do have a reach goal which includes donating more books if we get past the initial goal of $5,000 quickly.
Did you know that no matter what you contribute, you'll get inside information before anyone else? Be sure to back this crowdfunding campaign- sooner rather than later!
Time for some definitions!
What is type 1 diabetes?
JDRF defines type 1 diabetes (T1D) as “an autoimmune disease in which a person’s pancreas stops producing insulin, a hormone people need to get energy from food. T1D strikes both children and adults at any age and suddenly. Its onset has nothing to do with diet or lifestyle. Though T1D’s causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers play a role. There is currently nothing you can do to prevent it, and there is no cure.”
What is ADHD?
WebMD defines ADHD as “ADHD is a chronic condition marked by persistent inattention, hyperactivity, and sometimes impulsivity. ADHD begins in childhood and often lasts into adulthood. As many as 2 out of every 3 children with ADHD continue to have symptoms as adults.”
What is anxiety?
Merriam-Webster defines anxiety as “an abnormal and overwhelming sense of apprehension and fear often marked by physical signs (such as tension, sweating, and increased pulse rate), by doubt concerning the reality and nature of the threat, and by self-doubt about one's capacity to cope with it.”
What is OCD?
The Mayo Clinic defines OCD (obsessive compulsive disorder) as “a pattern of unreasonable thoughts and fears (obsessions) that lead you to do repetitive behaviors (compulsions). These obsessions and compulsions interfere with daily activities and cause significant distress.”
What is PCOS?
Healthline defines PCOS (polycystic ovary syndrome) as “a condition in which a woman’s levels of the sex hormones estrogen and progesterone are out of balance. This leads to the growth of ovarian cysts (benign masses on the ovaries). PCOS can affect a women’s menstrual cycle, fertility, cardiac function, and appearance”
What is endometriosis?
The Mayo Clinic defines endometriosis as “an often painful disorder in which tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining your pelvis.”
I have finished writing the content and am in the process of my rounds of edits. Then by the end of August, I am to send it to fresh eyes for editing. After thinking about these timelines and how they relate to the rest of the world, I realized that options for printing in 2017 would land on holidays and diabetes awareness month in November. I don't want to get lost in shuffle or have the books get lost in the holidays. I plan to deliver the books by March 2018 at the latest (ideally February). I then plan to do a hard launch of having the book ready to sell in March 2018. Why March? That's when my 18th Diabirthday is!
Risks and challenges
Although I have spent the past few years working on this project and the Kickstarter prep for several months, life might happen. I'm relying on the support of the community for editing and design elements.
The reason I have chosen March 2018 is to take anything that might come up like illness, delays, etc. Another reason is because I didn't want to distribute/spread the word during diabetes awareness month in November, and didn't want to risk the holidays because it's one of the busiest shipping times of the year.
The information in this book and any of my involvements is not to replace the relationship or advice between a patient and their medical provider. It is not intended as medical advice.Learn about accountability on Kickstarter
- (30 days)