"The documentary is not your typical "lets find a cure for x". It is about patients with a serious disease pushing aside the FDA and the pharmaceutical companies and taking over the drug trial process by running their own experiments on themselves by themselves. You might say we are brave or stupid, but one thing is for sure, we are fearless."
For this project I'll travel to different parts of the country, and the world, to interview people battling ALS and participating in drug trials - much like my brother Ben.
With your help I'll be able to tell the story behind these patients who, against the regulations of the FDA, are creating and innovating DIY (Do It Yourself) medical drug trials to get closer to realizing a cure.
Thank you so much Kickstarter and your members for helping me to tell my brother Ben's story. His fight is our fight as many of us are affected by health issues around the world. And although my brother is at the point were he has nearly lost his voice. Ironically, his voice has become and invaluable tool for us all in the fight against how the drug trial process works.
Articles about Ben Harris
Ben has become a crusader for the fight against ALS and the DIY drug trial process. He has generated quite a bit of press. Here are some articles about Ben.
Wall Street Journal: Frustrated ALS Patients Concoct Their Own Drug
San Francisco Business Times: Patients enlist in fight against ALS
The Scientist: Medical Mavericks
The Story with Dick Gordon: Two Men and their One Voice
Here & Now: ALS Patients Conduct DIY Drug Trials
ALS Discussion Broad: Oral Sodium Chlorite
Reactions from people who have read these articles
"Ben Harris is making his mark in the world, even as he suffers, his willingness to search for a cure is unrelenting. Ben is courageous in his battle, and continues to inspire all whom he comes in contact with."
"If the world was run by Guys like Ben, wouldn't it be a different place. Thanks for your unselfish actions and your love of man kind."
"I know Ben personally, he a very smart man with who I would trust with
my life, in fact many have. If he sees value in these drugs he probably
Hang in there Ben, if anyone can figure this out it would be you."
"Ben we are so grateful to you for sharing and bringing to light all that you have to endure due to the prohibitive drug trial process. Your work is so important!"
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