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Patients with terminal illnesses are refusing to wait for physicians, drug companies and the FDA to find cures for their diseases. Read more

New York, NY Documentary
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This project was successfully funded on September 24, 2012.

Patients with terminal illnesses are refusing to wait for physicians, drug companies and the FDA to find cures for their diseases.

New York, NY Documentary
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Jason Harris
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Jason Harris

First created  |  1 backed

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About this project

"The documentary is not your typical "lets find a cure for x". It is about patients with a serious disease pushing aside the FDA and the pharmaceutical companies and taking over the drug trial process by running their own experiments on themselves by themselves. You might say we are brave or stupid, but one thing is for sure, we are fearless."

Ben Harris

Ben injecting himself with sodium chlorite
Ben injecting himself with sodium chlorite

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For this project I'll travel to different parts of the country, and the world, to interview people battling ALS and participating in drug trials - much like my brother Ben.

With your help I'll be able to tell the story behind these patients who, against the regulations of the FDA, are creating and innovating DIY (Do It Yourself) medical drug trials to get closer to realizing a cure. 

Thank you so much Kickstarter and your members for helping me to tell my brother Ben's story. His fight is our fight as many of us are affected by health issues around the world. And although my brother is at the point were he has nearly lost his voice. Ironically, his voice has become and invaluable tool for us all in the fight against how the drug trial process works.

Thank you!

Jason Harris

Articles about Ben Harris

Ben has become a crusader for the fight against ALS and the DIY drug trial process. He has generated quite a bit of press. Here are some articles about Ben.

Ben (right) on The Story with Dick Gordon
Ben (right) on The Story with Dick Gordon

Wall Street Journal: Frustrated ALS Patients Concoct Their Own Drug

San Francisco Business Times: Patients enlist in fight against ALS

The Scientist: Medical Mavericks

The Story with Dick Gordon: Two Men and their One Voice

Here & Now: ALS Patients Conduct DIY Drug Trials

ALS Discussion Broad: Oral Sodium Chlorite

Reactions from people who have read these articles

"Ben Harris is making his mark in the world, even as he suffers, his willingness to search for a cure is unrelenting. Ben is courageous in his battle, and continues to inspire all whom he comes in contact with."

Heather Nickens

"If the world was run by Guys like Ben, wouldn't it be a different place. Thanks for your unselfish actions and your love of man kind."

Mark Pankuch

"I know Ben personally, he a very smart man with who I would trust with my life, in fact many have. If he sees value in these drugs he probably right.
Hang in there Ben, if anyone can figure this out it would be you."

Nikkia

"Ben we are so grateful to you for sharing and bringing to light all that you have to endure due to the prohibitive drug trial process.  Your work is so important!"

Dr. Buckley

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    12 backers

    If you pledge $10, your name will be included our our special thanks page after the film debuts.

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    13 backers

    Pledge $25 and have your name on our special thanks page. You'll also get a ALS awareness wristband.

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    22 backers

    Pledge $50 and you'll get your name on our special thanks page, an ALS awareness wristband and a DVD copy of the film.

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    43 backers

    Pledge $100 and you'll get your name on our special thanks page, an ALS awareness wristband, DVD copy of the film, and a limited edition production T-Shirt.

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    8 backers

    Pledge $500 and you'll get your name on our special thanks page, an ALS awareness wristband, DVD copy of the film, and a limited edition production T-Shirt and mention in film credits.

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    4 backers

    Pledge $1,000 and you'll get your name on our special thanks page, an ALS awareness wristband, DVD copy of the film, and a limited edition production T-Shirt, mention in film credits, and Producer credit in the film.

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    1 backer

    Pledge $5,000 and you'll get your name on our special thanks page, an ALS awareness wristband, DVD copy of the film, and a limited edition production T-Shirt, Producer credit in film, Featured credit on any Promotional Poster - DVD Box, Reproduction of the film, Complementary Ticket to any one premier or film festival where the film is shown.

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    0 backers Limited (1 left of 1)

    Pledge $10,000 and your name will be mentioned when we accept the Oscar Award for best documentary film.

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Funding period

- (30 days)