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I wish to create a collection of instructional materials and kits to teach people how to make beautiful, high quality modern corsets.
I wish to create a collection of instructional materials and kits to teach people how to make beautiful, high quality modern corsets.
282 backers pledged $22,792 to help bring this project to life.

Fibromyalgia, Arthritis, Pain, & Dealing with it.

Due to pain and fatigue, I am just going to do a quick update. I have Fibromyalgia and Arthritis, exacerbated by (severe fluoroquinolone toxicity), which have rendered my hands nearly incapacitated.

My dear husband and life partner, Rodney has been helping me edit the tutorial video. He is my hands. I sit beside him and tell him what to do. He will also help me with text and illustrations. Every night he spends hours massaging my achey parts. He helps me cut vegetables, wash dishes, and perform many of the basic tasks I once managed with ease. 

I am pursuing treatment, but struggle every moment of every day. Work on the project is slow because my whole body hurts all the time, not just my hands. The medications I take to manage the pain make me weak and tired. Sitting hurts. Everything hurts, always. There is no cure for my condition. 

I am struggling to come to terms with the possibility that I may never be able to sew, design, work or draw again, but I still have hope. I am still dedicated to completing this tutorial, however it may not be as shiny and beautiful as I envisioned it, and there is a very real possibility that I may have to abandon this project and dream altogether. Just thinking about it makes my head hurt as I hold back the tears.

Because I am in a constant state of pain, I am even more empathetic to others who suffer. I have been trying to stay positive by participating in Animal Activism. By speaking for Voiceless and Oppressed animals, I feel like I am helping, even in my limited capacity. Helping to relieve the suffering of others gives me purpose and hope during this depressing time of disability and personal suffering. 

To learn more about why am an animal activist, please watch You Will Never Look at Your Life in the Same Way Again | Eye-Opening Speech!, and follow up by checking out this awesome playlist by Earthing Ed

Best Speech You WIll Ever Hear (Updated) -Gary Yourofsky is another great video I highly recommend. 

If you also suffer in this way, please let me know what treatments work for you. 

))corset hugs((
Alexis

This grew out of our compost pile.
This grew out of our compost pile.
Yoga to avoid rigor mortis
Yoga to avoid rigor mortis
My hands look and feel like those of a woman twice my age.
My hands look and feel like those of a woman twice my age.
Rodney, the love of my life, & my Hands
Rodney, the love of my life, & my Hands
I froze my butt off and really struggled to participate in this Cube of Truth last month in SF. Unlike the voiceless animals we strive to liberate, I was able to go home to a hot meal and a warm bed.
I froze my butt off and really struggled to participate in this Cube of Truth last month in SF. Unlike the voiceless animals we strive to liberate, I was able to go home to a hot meal and a warm bed.

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    1. Alexis Black Creator on

      @Sue Lee, Thank you
      ))hugs(( <3

    2. Missing avatar

      SUE LEE on

      Wishing you joy. I hear you