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I wish to create a collection of instructional materials and kits to teach people how to make beautiful, high quality modern corsets.
I wish to create a collection of instructional materials and kits to teach people how to make beautiful, high quality modern corsets.
282 backers pledged $22,792 to help bring this project to life.

Quick Update, Ongoing Disability

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Dearest Project Supporters,

I must be brief, because typing is very slow and painful for me. I am barely able to use my hands to type or sew. I am in constant pain, which is exacerbated mostly by using the tools of my trade.

I am receiving treatment, but have yet to receive a helpful diagnosis. I am still suffering from severe flouroquinolone toxicity and Repeated Stress Injury. I am now doing physical rehab twice a week. I had a spinal MRI earlier this week.

I have been unable to work on this project, and I am down to accepting only two corset orders a year, because it's all I can handle without causing my hands to become useless. I used to make 30-50 custom corsets a year. I hate being disabled. It's the most humbling thing I have ever had to deal with. Anyone who knows me, knows what a hard worker and avid artist and maker I am.

Thankfully I receive disability benefits, my only source of income, which has been a life saver for me. My days are spent trying to do as much as I can, but even daily activities such as cooking, eating, and housework can be agonizingly painful. The most challenging aspect is not the pain itself, but having to come to terms with my disability and the fact that I can't draw, sew or use the computer to create for pleasure and to earn a living. I live to create, and I can't right now.

I hope and pray that my my hands will be restored to me. The anxiety I feel every day as a result of being unable to work on this kickstarter project, or even make gifts for loved ones breaks my heart a little more with each passing day.

Please don't be angry with me. If I could, I would make *all the things!*. For now I have to focus my energy on self-care and recovery. My doctor advised me to avoid using the tools of my trade because every time I work for an even hour, the inflammation becomes so bad, I can barely brush my teeth or comb my hair. Typing this short update will likely cost me a week of punishment.

I am so determined to get better. I have so many specialists working on my case, and I am doing everything I can to find out what's wrong so I can get better. I want nothing more than to finish this project. I want to make tutorials for a living, not just to fulfill my obligation to you wonderful humans, who put your faith in me. My overall health has improved vastly over the past few months. A few months ago my whole body hurt and was so weak. Flouroquinolone toxicity can be so brutal. It has really devastated my body, but I am getting better. My main issue now is my hands. I am doing everything in my power to recover so I can get back to work. Thank you all so very much for your patience and kindness.

Screenshot of my MRI, received from the lab today
Screenshot of my MRI, received from the lab today
I kept trying to work because I'm stubborn, so my husband took me to South Padre Island for a week for mandatory R&R
I kept trying to work because I'm stubborn, so my husband took me to South Padre Island for a week for mandatory R&R
I made myself this simple single layer corset for back support. It would normally have taken a day, but it took working an hour a day for several months due to pain.
I made myself this simple single layer corset for back support. It would normally have taken a day, but it took working an hour a day for several months due to pain.
Whole foods, plant-based diet for healing and reduced inflamation.
Whole foods, plant-based diet for healing and reduced inflamation.
I lost so much weight because I was barely able to eat for a whole month due to health problems. I am up to 102 lbs now, slowly regaining my strength. Sorry for the dirty floor. I could barely walk during this sucky month, so cleaning was not an option.
I lost so much weight because I was barely able to eat for a whole month due to health problems. I am up to 102 lbs now, slowly regaining my strength. Sorry for the dirty floor. I could barely walk during this sucky month, so cleaning was not an option.

Sincerely,
Alexis

Sean J. Schluntz likes this update.

Comments

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    1. Alexis Black Creator on

      Khadija Ross,
      Thank you so much for your thoughtfulness and consideration. I hope you and your loved ones are happy and healthy. I think of you from time to time. My how time flies. ))hug((

    2. Missing avatar

      Khadija Ross on

      Alexis, I didn't contribute because of anything material I wanted or was expecting. I contributed to be a part of your dream. The fact that your dream has gone a bit astray, I am so sorry for you, but not disappointed by anything but your health problems. I know you are throwing yourself whole heartedly into the best recovery you can, you don't do things by half measures. Keep your spirits up, get as well as you can, and never feel that you owe anyone anything more than that. Even had I known that this would be a truncated journey, I still would have gotten the ticket.Be at ease. 💗 Khadija