A solo exhibition - exploring patient experience
A solo exhibition - exploring patient experience
Research, a Solo Exhibition and Artist Talks at Berlin Blue art gallery for Emma Barnard an artist exploring patient experience
Research, a Solo Exhibition and Artist Talks at Berlin Blue art gallery for Emma Barnard an artist exploring patient experience Read more
About this project
I am a London based visual artist, specialising in lens-based media and interdisciplinary practice and research within Fine Art and Medicine. In 2011, together with Mr Michael Papesch FRACS, a consultant ENT (Head and Neck) surgeon, we set out to explore through visual art the patient experience on a project titled Patient As Paper. Our aim was to be able to offer patients a ‘voice’ that helped to personalise what can for many be a depersonalising and frightening experience.
In the words of Mike Papesch: ‘The patient story, and emotions, thoughts and concerns are best heard directly from our patients. It is difficult to understand the patient experience, that which goes beyond the medical, biological understanding of illness and intervention. Questionnaires and patient feedback are important. The use of patient images, and patients’ expressions or descriptions of their thoughts, is another way of gaining empathy and understanding of the patient experience. It helps us understand individual patient experiences. It brings the patient experience message to us in a unique and powerful way. Understanding the patient experience is important. Having empathy for the individual in front of us, at the time of each consultation, is crucial to our work in medicine. This art trains us, and aids us, to improve our skills of patient empathy’.
Since that day and over the following years the work has grown exponentially, far beyond my expectations. Time has been spent working and conversing with consultants from other disciplines for example a Psychodermatologist and a Consultant Vascular and Endovascular surgeon. There is now a touring exhibition entitled Patients As People, showcasing the artwork that was created with patients while they were in Mr Papesch’s care. Initially supported by the Arts Council, this exhibition has been touring for nearly five years and has been installed at: - Skipton House (the Department of Health); The Health and Care Innovation Expo, Manchester; The Faculty of Medicine, Lancaster University and The Department of Medicine and Health Sciences at Surrey University, to name only a few locations.
The Patient As Paper work was also exhibited at both the William Morris Gallery (which won the Art Fund Museum of the Year Award 2013), in an exhibition entitled 'If Yesterday Were Today' that toured, Italy, Berlin and London and more recently, at the invitation of Jonathon Tomlinson GP, The Lawson Practice in Shoreditch, London. The work exhibited shows both the surgeon’s perception and how a patient may feel when viewed purely as a diagnosis or condition. For example, images illustrate through embroidery the Langar Lines, which are the contours of the face used as a guide for the surgeon’s scalpel. Other work responds to the many comments from patients expressing their belief that their consultant is a saviour figure, or even a miracle worker. This work has now reached and been viewed by an audience of hundreds, and through social media possibly thousands of healthcare professionals and patients. In addition, I have delivered several talks to medical professionals, for example at the NHS Leadership Academy Conference and also Medical Humanities Conferences, such as DotMD in Dublin.
I am delighted to have been invited by a Berlin gallery to exhibit a retrospective show of my work during Berlin Art Week, meaning that my work will potentially be exposed to a new audience of hundreds. The gallery is in the process of contacting several local hospitals, including the Alexianer St. Hedwig-Krankenhaus, the Charité – Universitätsmedizin and the Joseph-Krankenhaus, which will be invited to view the work and hear my artist presentation talk. The gallery’s affiliation with the Arts & Ethics Research Group of Edinburgh University and the fact that several of the gallery's artists are crossing the line between science and art with their work has led to an increase of researchers, scientists and medical professionals as part of the gallery's audience.
This will be the first retrospective of this important work covering the previous five years working with patients and consultant surgeons to explore the patient experience. The exhibition will be widely publicised to a medical audience through the artist run gallery Berlin Blue. In order for me to capitalise on this once-in-a-lifetime opportunity to communicate this work live internationally, I need your support with: -
- Printing and framing new artwork
- The transportation of artwork between London and Berlin
- Publicity and the marketing of the exhibition, before and during its installation in Berlin
- The design and printing of the exhibition poster, invitations and catalogue
It is my hope that this Kickstarter campaign will enable me to raise the funds in the short timeframe between now and September 2017. Your help is crucial to making this happen; supporting the awareness and educational influence of my work will help thousands of people who need to receive medical treatment – perhaps you! My art practice will be immeasurably enhanced by these new encounters, enabling me to return to the UK to create new artwork and continue as an advocate for patients everywhere.
Thank you for taking time to read my campaign; please lend your support.
Risks and challenges
It is my hope that this Kickstarter campaign will enable me to raise the funds in the short timeframe between now and September. If I am unsuccessful, the invitiation still stands for 2018. However this is my one opportunity to exhibit in Berlin as part of Berlin Art Week. This would increase my audience by hundreds!
Your help is absolutely crucial to making this happen in 2017.
Thank you for taking time to read my campaign.
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