The 60-year odyssey of a "blue baby." A Pacific Northwest tale of technology, perseverance and love.
UPDATE 5-26-12, 11:58 a.m. Pacific Time: Only 6.5 hours to go! We're shooting for $8000, so that Randy can write nonstop for two months, which will give him a real toehold on the completion of Bert's Box: Wired for Life. We're very, very close. THANKS FOR HAVING THE VISION TO HELP HIM GET THERE!
Bert's Box: Wired for Life is about Randy Hunt’s life-long adventures with a dangerous heart condition─tetralogy of fallot─and adjusting to a world that he couldn’t seem to keep up with. It’s also about growing up in a small town on the lower Columbia River in Oregon in the mid-20th century. Randy’s grandfather and his family had a general store and post office on the docks at Svensen Slough. It was a child's paradise─a lively and colorful time and place.
Randy has been writing about his heart since 1994, when he got his first defibrillator. In August 2011 he put all his notes together and started Bert's Box. But being a hands-on painting contractor and trying to finish the book isn't working anymore. He can't give his all to either one when he's doing both, and he believes that Bert's Box will be of greater value to the world. He's driven to finishing it now.
With a goal of publishing at the end of summer, 2012, Randy is halfway there. He has two editors and an agent, and has received one $3000 grant. On April 28, he'll talk about Bert's Box on KMUN Coast Radio, an NPR affiliate. They'll interview him again when the book is finished.
Randy's doctors and the cardiology staff at Oregon Health Sciences University have been very generous in helping him with research and letting him pick their brains. They're interested in knowing what treatment is like from a patient's viewpoint, and they're looking forward to promoting the book to other doctors, clinical staff, and patients.
Through the unique funding mechanism of Kickstarter, Randy is seeking help from friends and other fans and the community at large to "buy time" to write the rest of the book and get it published and marketed.
Bert's Box is a story many people will relate to and benefit from, whether they've got a life-threatening illness or challenge themselves or they know someone who does, or they're in need of a dose of courage, or they simply love stories about the Pacific Northwest.
If you think this is a tale worth telling, if you would like to read it, please help Randy get the job done. Pledge your support in exchange for one or more of the incentives listed on the right of this page.
Bert's Box is ultimately an invitation to keep on going when things get really bad. It's a life-affirming story, and Randy needs your help getting it out there.
P.S. DON'T MISS THIS EXCERPT FROM BERT'S BOX. And thanks again for considering a contribution to help Randy finish and publish the book. You can also help spread the word by sending emails, posting on Facebook, Twitter, etc., and talking to anyone you think might be interested in getting this book into the world. Thanks again! And don't forget to follow your dreams!
Everything counts! Everything is much appreciated. And backers attract backers, so even a small contribution drives that number up and encourages others to join in the game. So thanks for whatever you can manage, and thanks for your interest in the Bert's Box: Wired for Life project!
Randy can keep it all! You don't get anything at all if you don't make the goal by the declared time and date. BUT if you go over by that time, you collect all of it.
$6000 will give Randy 1.5 months of devoted writing. This is fantastic. And, he needs 4-5 months to complete Bert's Box: Wired for Life. So we're shooting for $8000 by May 26 at 6 pm, when the campaign is over.
It's actually a combination of 4 heart defects that are present at birth and account for 10% of all cases of congenital heart disease. Here's what WebMD says about the 4 defects:
* Ventricular septal defect (VSD) - A hole between the two bottom chambers of the heart (the ventricles) that permits oxygen-poor blood from the right ventricle to mix with oxygen-rich blood from the left ventricle.
* Pulmonary stenosis - Narrowing of the outlet to the pulmonary artery area, with an abnormal pulmonary valve impeding blood flow from the right ventricle to the lungs.
* Right ventricular hypertrophy (RVH) - A thickening and enlargement of the muscle of the right ventricle.
* Overriding aorta - A case in which the aorta overrides or straddles the wall (septum) between the ventricles, permitting oxygen-poor blood to flow through the VSD into the aorta.
Open heart surgery is performed on patients with tetralogy of fallot in infancy or early childhood. Untreated, the condition is usually fatal before age 20. With open heart surgery, the patient has an excellent chance of survival, and they generally undergo life-long procedural corrections.
You can contact Randy directly at email@example.com
Harry will be 4 years old on August 16. He's a cross between a bichon and a loony-goony.
We ran the first campaign---Bert's Box---with $18,000 as the goal to be reached in 30 days. That amount represented 5 months of solid writing and editing to finish and publish the book. The campaign ended on April 26 without having reached the goal. Kickstarter told us they never delete campaigns, "for transparency's sake," even if they're not funded. The first campaign is not functional.
We mounted another campaign---Bert's Box: Wired for Life, the current campaign---with a lowered goal of $6000, to end May 26 at 6pm. We're shooting for $8000 so that Randy can have two months of devoted work. And, of course, if there are any big funders out there, we'd love to make it to the original goal of $18,000 so Randy can fully launch Bert's Box: Wired for Life by the end of summer, 2012, as originally planned.
The number of backers on the top-right of the campaign page doesn't jibe with the donation numbers below it. How come?
If a backer chooses not to receive the reward that comes with their level of donation, they won't show up in the list of donation levels. They do, however, show up everywhere else in the campaign, including in the number of backers at the top-right of the campaign page.
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